New York State Developmental Disibilities Planning Council

George E. Fertal Sr. ,Chairperson

Governor David A. Paterson

Sheila M. Carey, Executive Director

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Features
Governor Paterson Announces OMRDD to Become Office for People with Developmental Disabilities
Public Hearing on the Draft of the Statewide Comprehensive Plan
ADA Celebrates 20 Year Anniversary
Health Care Updates
The Benefits of Social Security for Children
Technology Resources
Resources and Trainings on Financial Subjects
Announcement of ECDCs
The Direct Support Professional Alliance of New York State
Experiences Of Self Advocates Captured In Time
Parent to Parent Alexandra Santana
New Disability Related Surveys
Students of a New Federal Project Graduate Pursue Jobs at the U.S. Department Of Labor

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Last Month's Features
Applications Available for 2011 NYS Partners in Policymaking Program and Ongoing Graduate Training Series
A Guide on Voting From the DDPC Occasional Paper Series
2010 New York State Special Olympics
Difference Makers
Financial Information Updates
From the Fathers Network at Parent to Parent of NYS
New Episodes of the Help Wanted Series Are Available
How Students with Disabilities Can Prepare for College
New Health Updates
Rose Hoptman Receives Paul Vanas Memorial Service Award
Summer Camp Catalog
“With Help From a Friend, You Can Reach the Stars!”
United Spinal Association Free Publications
Parent to Parent Lynda Kimball
2010 ADA Anniversary Tool Kit Available Online
 

Parent to Parent Ellen McHugh

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Parent to Parent Coordinator and Assistant Director: Ellen McHugh
Office location: 75 Morton Street, New York, NY 10014

Ellen has worked for Parent to Parent of NYS at the Metro-NY office for 15 years.

Ellen can be contacted at:
1-800-405-8818 or 212-741-5545 and by email ellensdesk@verizon.net

Ellen resides in Brooklyn and is married to John McHugh. She has three sons, Ruarc, Ryan and Nolan.

What characterizes me that I would like to make sure other people know about me and remember me by?

A sense of humor, a positive approach and welcoming heart.

Why is Parent to Parent important to you?

I believe that there is nothing like talking to someone who has been there and done that. It’s a relief to know that you are not alone, that you can talk freely, to another parent who will listen respectfully. Another parent who can share experiences and knowledge in a sometimes confusing, conflicting and overwhelming world and can provide a person with an understanding heart and ready ear is a gift.

Did you contact Parent to Parent when your son was younger?

Parent to Parent wasn’t around in 1980 when my son received his diagnosis, but I did receive a call from a parent who had a child with a hearing loss. That was the gift that kept on giving. To this day I can remember the sweeping sense of relief I had when we talked. When Parent to Parent of NYS was introduced to New York City in 1994 I knew it would be a success and I hoped to part of it.

How does the opportunity to connect with other parents benefit families?

Parents are given the opportunity to create a unique and supportive community. That community will grow in an almost miraculous way. One day you are alone, dealing with issues for which you were unprepared and suddenly, your world has expanded. You are not alone. It may not be the world you imagined, but it is a world that can offer support and comfort when you need it.

What happens when a parent speaks with another parent and receives support from another parent?

There’s a sense of relief and a sense of community where information can be shared openly, where questions, no matter how many, can be answered. Support parents provide a safe haven for the parent who is going through a period of adjustment. It’s as if you were having tea with a friend and a spoonful of empathy as a sweetener

What qualities do I look for when recruiting parents as supporting parents?

Common sense, self confidence and most importantly a sense of humor. The support parent should also have patience...to listen, to soothe, to provide information takes time and patience.

What kind of information, referrals, or community connections are families looking for?

Parents want information about specific issue concerning their child, referrals to good medical staff, referrals to good school programs, referrals to supportive religious communities, referrals to barbers and hairdressers, sports programs and libraries. The list is endless and sometimes surprising.

Was there a time when someone went above and beyond all expectations to help you with your child?

There was a local basketball coach who was famous in the community for his temper and tantrums during games. When Ruarc was selected for the team we were both more than just a little frightened. I took him to practice all set to ask for a switch when the coach knelt down to talk to Ruarc, to get closer to Ruarc. He said, “We’re ready to play. And I am glad you’re here.”

March 2010 Email the story


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August 2010


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Upcoming DDPC Meetings

August 2010:

8/9/10 - Chilodrens Issues Committee Meeting
8/11/10 - SCCE Committee Meeting
8/12/10 - Adult Committee Meeting

*Notice*

Open Government and the New York State Developmental Disabilities Planning Council (DDPC). All DDPC meetings are held in Albany, NY unless otherwise noted.

Under law, the New York State Developmental Disabilities Planning Council (DDPC) meetings and DDPC Standing Committee meetings are open meetings. If the public wants to attend, they can attend as observers. Participants may be asked to leave during breaks in the deliberations and when the meeting goes into executive session.

If more information, please contact the DDPC directly.



People First Language

The DDPC strictly adheres to and encourages the use of people first language. However you may note that in some articles/stories appearing in the E-Bulletin the language used is not always entirely people first. Articles submitted to the DDPC are taken verbatim from the source and are therefore not edited by the DDPC for correct people first language due to copyright restrictions.

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Last Updated July 31st, 2010